Research Can Be Scary,
Let’s Break It Down
Why Should You Participate in Research?
The Latino/Hispanic community needs our help
Right now, about 18 out of every 100 people in the U.S. are Hispanic or Latino. By the year 2060, that number will grow to 28 out of 100. But when scientists study Alzheimer’s disease, not many Hispanic or Latino people are part of the research. Fewer than 9 out of 100 people in these studies are from this group. That’s a problem because Hispanic and Latino people are 50% more likely to get Alzheimer’s than White people who are not Hispanic. It’s very important to make sure they get the help and care they need.
There’s still much we don’t know about Alzheimer’s, but we do know that certain factors, like high blood pressure or diabetes, increase the likelihood of developing the disease. Other things, like not having enough money or good schools, can also raise the risk. Sadly, Hispanic and Latino people often don’t get the care they need. More research can help us learn more about the disease and make it easier to talk about without being afraid.
Learn more about how Alzheimer’s impacts the Hispanic/Latino Community
What Happens During Research?
Research teams may differ in terms of what they ask or have you do, but we have a general guideline of what to expect when participating in a trial.
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Consent, or your approval, will always be asked before participating in a research study. You can say no at any time. Also, the study should be explained to you in full so you understand it and know all risks.
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Researchers need to know more about you before starting. They will ask things such as health history, general background information and family history. They may also ask about current symptoms and mood. A physical exam could happen also.
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Researchers may need to take brain scans, such as a CT scan or an MRI, to look for things called biomarkers that help find and track Alzheimer’s in the body. A blood sample may be needed for this too.
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Your brain functions and memory may need to be tested. These tests can be spoken, written, or on a computer. This can change based on the study.
Want to get involved in research? Contact us here.
Remember that research can have risks associated, but researchers do their best to lower these risks. You can say no at any time, and you do not have to participate if you do not feel comfortable.